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Systemic
Lupus Erythematosus (SLE)
(say:
sis-teh-mik lew-pus er-eh-thee-muh-toh-sis)
~hard
to say....harder to live with~
Lupus
is Latin for wolf, Erythematosus means
redness. In the 18th century, when
lupus was just starting to be recognized as a
disease, it was thought that it was caused by
the bite of a wolf. This may have been because
of the distinctive rash characteristic of lupus.
(Once full-blown, the round, disk-shaped rashes
heal from the inside out, leaving a bite-like
imprint.)
Many people
refer to this rash as the marlar butterfly
rash. It frequently occurs on the tops of the cheeks,
across the bridge of the nose and above the
eyes. This "butterfly" shape is very
distinctive, and is a good indication of lupus,
but is not necessary for diagnosis
Systemic
Lupus Erythmatosus, commonly called lupus, is
perhaps the most misunderstood and misdiagnosed
disease in the history of medicine. It has been
called "The great imitator" because
its symptoms can mimic other, more common
diseases and syndromes. The
disease, is believed to have been described by
Hippocrates around 400 BC. Lupus is not a new
disease, but has been described more in the last
150 years. Approximately 25 years ago, lupus was
considered a terminal disease.
Lupus is an
autoimmune disease, a type of self-allergy,
whereby the patient's immune system creates
antibodies which instead of protecting the body
from bacteria & viruses attack the person's
own body tissues. This causes symptoms of
extreme fatigue, joint pain, muscle aches,
anaemia, general malaise, & can result in
the destruction of vital organs. It is a disease
with many manifestations, & each person's
illness and symptoms may be different. Lupus can
mimic other diseases, such as multiple sclerosis
& rheumatoid arthritis, making it difficult
to diagnose.
Anyone can have
lupus, but it is 9 times more common in females
than in males. There seem to be environmental
and genetic factors that predispose an
individual to lupus, but the exact causes of the
disease are unknown.
Lupus tends to
have a dormant, inactive stage during which the
patient lives a normal, or nearly normal
lifestyle. There is also an active stage, called
a flare, during which the symptoms are severe,
and can range from irritating to crippling.
Currently there
is no single test that can definitely say
whether a person has lupus or not. Only by
comprehensive examination and consideration of
symptoms and their history can a diagnosis be
achieved.
Lupus is not
contagious. There is no cure...
Lupus
can be triggered...
through
sunlight
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at
puberty
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as
a result of trauma
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after
childbirth
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after viral infection
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during
the menopause
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after
a prolonged
course of medication
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The
symptoms
may include:
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There
are many helpful lupus sites on the
'net.
These are a few of my favorites.
The
National Lupus Foundation
A totally comprehensive site with a wealth of
information.
Lupus at Suite101.com
By
Karyn Moran Holton.
Wonderful site for information, helpful links,
and support.
Karyn is a nurse with an uplifting personality,
who also has lupus... and a lot of understanding. Provides great support and
info through a chat board, and informative
articles.
Stories
of Lupus
Two women with lupus went on the
road to film a documentary on lupus and the
people who live with it every day.
Touching, poignant, and so true to life that you
cannot read them without beginning to understand
what
it's like to live with lupus.
Lupus
and Me...In The Company Of The Wolf
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